Reported Benefits of Participation in a Research S

Authors: Anabella G Castillo Lina Jandorf Linda D Thélémaque Sheba King Katherine Duhamel

Publish Date: 2011/06/05

Volume: 37, Issue: 1, Pages: 59-64

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Abstract

Racial and ethnic minorities are significantly underrepresented in clinical research trials Several sociocultural and systemic barriers ranging from discrimination by the health care system medical mistrust to low physician referral rates and lack of knowledge of research studies have been identified as impacting participation One hundred and fifteen participants were culturally matched and were interviewed followed by up to an additional four interviews over a 12 month period Responses were analyzed to understand the perceived benefits to participating in a prospective randomized longitudinal clinical research trial about screening colonoscopy Over twothirds 644 of participants reported “knowledge awareness and/or information about colonoscopy and general health” as being the greatest benefit they received Desire to undergo the screening and the pride of completing the study was ranked second and third respectively Understanding the reasons that participants choose to participate in research studies will ultimately assist researchers close the gap in minority representation allowing for greater generalizability of research findingsThis project was supported by Grant R01 CA10413001 from the National Cancer Institute The authors would like to extend thanks to Marissa L Botwinick Melissa Solis Diana Hall Tiffany Edwards Jennie Ellison and Simay Gokbayrak for their assistance throughout the writing of this paper

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