Authors: Karen M Clements Wanda D Barfield Milton Kotelchuck Kimberly G Lee Nancy Wilber
Publish Date: 2006/05/19
Volume: 10, Issue: 5, Pages: 433-441
Abstract
Objectives The Individual with Disabilities Education Act mandates Early Intervention EI services for infants and toddlers with developmental delay We assessed the percentage of infants at risk for developmental delay due to characteristics present at birth who were referred to Massachusetts EI within 1 year of birth evaluated for eligibility and eligible for services In addition we identified birth characteristics that independently predicted 0–1 year program referral evaluation and eligibility Methods The Pregnancy to Early Life Longitudinal PELL data system linked birth certificate hospital discharge and EI program data of 219037 infants born in Massachusetts 1998–2000 Multivariate logistic regressions identified independent infant predictors of referral evaluation and eligibility Results Of 219037 births 14852 68 were referred to EI within 1 year Birthweight 1200 g OR=97 95 CI 33–129 and birthweight 1200–1499 g OR=74 95 CI 58–95 strongly predicted referral Referral was high 88 among infants with two or more birth risks Among referrals 88 were evaluated for eligibility The strongest predictor of evaluation was triplet birth OR=43 95 CI 16–118 Among infants evaluated 85 were determined to be eligible Conclusion EI referral and evaluation are high among infants born at risk for delay in Massachusetts Some characteristics not included in the state’s highrisk definition eg birthweight 1200–1499 g were identified that predicted referral Most referrals were eligible for services Results demonstrate the value to states of using linked population and program data for program evaluationThe PELL data system is supported by the Centers for Disease Control grants S1887 – 21/23 and S3485 – 23/23 Additional funding for Early Intervention program evaluation was provided by US Department of Education Early Intervention grant 45139021 The authors would like to thank Jean Shimer for her assistance in preparing the Early Intervention data and Howard Cabral Judy Weiss and Katharine Thomas for their careful review of the manuscript
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