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Title of Journal: Pediatr Surg Int

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Abbravation: Pediatric Surgery International

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Springer Berlin Heidelberg

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DOI

10.1002/chin.199438080

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1437-9813

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Translation and cultural adaptation of the Hirschs

Authors: Helena Wigander Björn Frenckner Tomas Wester Margret Nisell Maria ÖjmyrJoelsson
Publish Date: 2014/01/31
Volume: 30, Issue: 4, Pages: 401-406
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Abstract

Children with anorectal malformation or Hirschsprung’s Disease HD often have functional problems with constipation or incontinence The Hirschsprung’s Disease/Anorectal malformation Quality of life Questionnaire HAQL developed in the Netherlands is a diseasespecific instrument measuring the quality of life QoL of children and adolescents with fecal incontinence HAQL includes several domains with questions concerning diet laxatives constipation diarrhea urine and fecal incontinence in addition to social and emotional functioning body image and physical symptoms The purpose of the study was to translate and culturally adapt the HAQL questionnaire into SwedishThe translation correlated well with the original All in all the Swedish and the Dutch versions agreed well The Swedish translators chose to use a more simplified language in the questionnaires intended for the children but used another choice of words in the proxy version and the adolescents’ versionThe translation of the HAQL instrument into Swedish gives us a diseasespecific QoL instrument for children and adolescents born with HD and anorectal malformations ARM The translated and culturally adapted HAQL instrument is included in a survey regarding children and adolescents born with ARM

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