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Title of Journal: Clin Rheumatol

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Abbravation: Clinical Rheumatology

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Springer London

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DOI

10.1007/978-1-4899-1860-4_7

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ISSN

1434-9949

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Evaluation of a maildelivered printformat self

Authors: Janet L Poole Betty Skipper Cindy Mendelson
Publish Date: 2013/05/09
Volume: 32, Issue: 9, Pages: 1393-1398
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Abstract

Patient selfmanagement programs usually require participants to attend group sessions which can be difficult for individuals with mobility issues In addition many programs are not disease specific The purpose of this study was to evaluate the effects of a maildelivered selfmanagement program for individuals with scleroderma SSc The program consisted of a workbook and exercise DVD that provided information on medical aspects of the disease dysphagia fatigue management advocacy activities of daily living oral hygiene skin and wound care psychosocial changes exercises and other features of the condition Participants provided feedback on the effects of the selfmanagement program by responding to questions on demographic and six selfreport questionnaires keeping a health log and participating in a program evaluation interview A total of 49 participants completed the program and returned the postintervention questionnaires Participants consistently reported that the program was easy to use Depression fatigue and pain decreased and hand function selfefficacy for controlling pain and selfefficacy “other” improved however the only statistically significant change was in selfefficacy for pain This is the first study to develop and assess the effects of a maildelivered format for selfmanagement for people with SSc A selfmanagement program should help individuals with SSc develop selfmanagement strategies to manage this complex disease and advocate for themselves to promote better healthThis study was supported by a grant from the National Institutes of Health National Institute of Nursing Research grant no RO3 NR009697 through the US Department of Health and Human Services The authors wish to thank Una Buck for data entry and the participants who gave their time to this study

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